Dating parents special needs children

Eliza is now nine and is in an integrated class, with a paraprofessional to assist her and she still receives occupational therapy, physical therapy and speech therapy.

To get to this point Eliza spent 100 days in the NICU, has had over 5,000 hours of various therapies and her medical needs are attended to by eight different specialists.

Friends and family will, with all great intentions, tell you things like “you’re never given more than you can handle” or “things happen for a reason.” Really?

My stock answer over the years has become that if people are not given more than they can handle, then why do we have fully booked mental hospitals?

That person may not be walking in your shoes but at least they are rolling their eyeballs with you about the platitudes.

Depending upon the modifications you can make to your work schedule (start later in the morning, leave early, take an unpaid day once a month, work 4 longer days instead of a typical 5 day work week, win the lottery) you will need to schedule medical appointments around your schedule and often schedule multiple appointments for the same day (this will often require sucking up to the medical office secretary or occasionally begging).

If your child has multiple specialists, I preferred one-stop shopping and had all of the specialists at the same hospital.

As a single parent you likely do not have the luxury of quitting your job so that you can attend to all of this. What helped me was getting a really unattractive and enormous whiteboard that I mounted to the front door.

I drew a monthly calendar and listed every appointment and therapy session.

Leave a Reply